STORIES
people who inspire
We hope you enjoy and find comfort in reading about other patient stories below, and we would love to hear your story. If you are interested in sharing your pheo para journey, please fill out this form. Or, you can send us a video of less than five minutes. Your story may be profiled during our Pheo Para Phridays on social media. Every Friday, we feature a courageous pheo para trooper’s story.
Disclaimer: Personal stories are shared solely for peer support purposes. It is not the intention of the Alliance to dispense medical advice or a potential course of treatment. Anyone seeking medical advice should contact their physician.
saif’s story
As an individual with Pheochromocytoma and Paraganglioma, I share my personal journey of resilience and gratitude, highlighting the value of a positive mindset and an appreciation for life’s simple moments. My story aims to inspire others who also struggle with the same illness, exploring the innate human desire for survival and progress while highlighting the...
jazmyns-story
“I exhibited symptoms for the better part of six years, but it was always passed off as anxiety or stress.” https://www.youtube.com/watch?v=94bO5Ak8wfw Special thanks to Jazmyn and her mom for sharing their SDHB paraganglioma journey, and to INCA for creating this video as part of their broader effort to raise awareness about neuroendocrine cancer.
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Stay up to date with the latest research and news, events we are hosting, and other organizations that we are participating with as we move forward to find a cure!
