What is Pheochromocytoma and Paraganglioma Foundation – Pheo Para Foundation
The Pheo Para Foundation is a non-Profit organisation registered under section 8 of companies act 2013.
Pheochromocytoma and Paragangliomas are uncommon tumours which require experienced team management. Though amenable to optimal management, delayed diagnosis can have devastating consequences.
To look after this unmet need we have started a non- profit organisation named “Pheo Para Foundation” with the following aims:
- Create awareness of Pheochromocytoma and Paraganglioma amongst the patients, family members and medical caregivers
- Guide patients for optimum care and monitoring of their evolving disease burden.
- Guide patients’ family members for the possible risk of the disease to them, genetic test if warranted as well as long term monitoring of the individuals who test positive.
- Facilitate research into all aspects Pheochromocytoma and Paraganglioma with the aim of helping the patients optimally deal with the disease burden
Vision
Vision is to create a foundation dedicated to create awareness and optimise care of patients and families of pheochromacytoma and paraganglioma
Mission
Mission is every patient and their family members with pheo and para gets optimised care guided through their genetic test results.
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Stay up to date with the latest research and news, events we are hosting, and other organizations that we are participating with as we move forward to find a cure!
